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Author Topic: Prayers needed  (Read 16575 times)

Charlie 5320

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Re: Prayers needed
« Reply #60 on: February 11, 2016, 07:56:59 AM »
UPDATE
Many thanks to those who pray for my wife and I. We did get some good news last week before our chemo treatment. Her cancer markers have went down from 23. something to 2.03 so the Dr. says the treatment is working. She has scheduled another cat scan for the 22nd after her next treatment. If the tumors have reduced, she will contact the Drs. in Chicago to see what they think about doing another surgery. She has been doing pretty well, lately, not so sick, and seems to bounce back much quicker. The coldness side effects however are getting worse, and we have had a very cold spell for a couple weeks. She can't touch or drink anything cold, then it has to be through a straw. Can't drink water from the refrigerator from a glass as her lips burn like they have frost bite. She has been back to work for a while now and does put in 8 hrs most days. Going back to work has helped her stay strong, I believe. I was against it at first, but she was right. Good thing she likes chicken soup, because that's about all she can keep down the first couple days after chemo.

Thanks again Charlie.
2003 National Dolphin 5320
496  8.1  Workhorse

98 Damon Daybreak 3130
GM Vortech 454  4L80E
SOLD

kdbgoat

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Re: Prayers needed
« Reply #61 on: February 11, 2016, 08:13:25 AM »
GOD IS GOOD!!! We'll keep the prayers coming. It's good to hear she is getting better.
I know you believe you understand what you think I said,
But I am not sure you realize what you heard is not what I meant


2016 Leprechaun 319DS

oldme

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Re: Prayers needed
« Reply #62 on: February 11, 2016, 07:50:36 PM »
God is indeed Great.
I am glad to hear the progress and to know HE is agreeing with out requests / prayers.
Prayers and thanks continuing.

Thanks for the update.

gwcowgill

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  • Retired USAF, Retired Auto Instructor Dade Cty Sch
Re: Prayers needed
« Reply #63 on: February 12, 2016, 05:58:34 PM »
Answered prayer indeed, God is great.
2009 Bounder 36B, 2014 Honda CR-V, various grandchildren when school is out. KG4LHS
2014 Honda CRV Toad,
2014 Jeep Grand Cherokee Toad

Bob Maxwell

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Re: Prayers needed
« Reply #64 on: February 17, 2016, 07:10:54 PM »
Try very dark chocolate for her. Bev lived on it for about 6 months. :)
Walgreens had a good selection.
Adiós. . .

Bob †
and wife Betty Font 

. . . still ridin' for the brand.

1994 Suncruiser 34RQ, Cummins 5.9L/230 Allison 3060
'08 Kia Spectra5,
FMCA SKP

Holbrook AZ, west of the Petrified Forrest NP on I-40

nineoaks2004

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Re: Prayers needed
« Reply #65 on: March 06, 2016, 10:04:07 PM »
My Prayers go with you and the family..
By the time you learn the rules of life
You're to old to play the game

Charlie 5320

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Re: Prayers needed
« Reply #66 on: March 08, 2016, 03:10:13 PM »
UPDATE

Went to the Dr. last week before the chemo treatment. We got some good news and some bad news from the last cat scan. The good news is the markers continue to stay low, and the cancer on the diaphragm is almost gone, the cancer in the pelvic area is about 1/2 the size it was when we started. The bad news, after 5 Dr.s looked at the cat scan they all agreed, she is NOT a candidate for surgery, too risky. She was very disappointed with that news, she was so looking forward to having the surgery to remove that pelvic cancer.   She does have a spot on her back bone now that wasn't found before. She had a pet scan yesterday, whole body, we won't know about that till the next chemo treatment. Side affects starting to show up now. Starting to loose hair, and her skin is real rough, cracking even though she is using the cremes prescribed. She's getting weaker all the time now. I think she's thinking about taking a break from the treaments, she's going to ask the Dr. about that when we get the results from the pet scan.   

Thanks for all the prayers Charlie
« Last Edit: March 08, 2016, 09:32:21 PM by 92GA »
2003 National Dolphin 5320
496  8.1  Workhorse

98 Damon Daybreak 3130
GM Vortech 454  4L80E
SOLD

ArdraF

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Re: Prayers needed
« Reply #67 on: March 08, 2016, 06:09:10 PM »
Quote
she's thinking about taking a break from the treatments

Personally I would not do that unless the doctors are very positive about it, the reason being that research now shows timing is extremely important with chemotherapy.  Breaking that timing could reduce the efficacy of the drugs and, lousy as it is, you want to do everything possible to get better.  We all want to see her become a Survivor!

ArdraF
ArdraF
:D :D

Charlie 5320

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Re: Prayers needed
« Reply #68 on: April 13, 2016, 07:53:21 PM »
UPDATE

The 10th treatment today, the DR says next ones will only be 2 chemos instead of 4. Starting to have dangerous platelets, and she is not bouncing back so well now. Also having trouble with her eyes now, not a good thing because she has always had poor eyes. Hair is thinning badly and breaking off, what she does have.  She will leave her on this dose unless the markers start climbing. Still not a candidate for another surgery at this time. She is pretty much pain free at this time so that is great.

Thanks for all the prayers Charlie
2003 National Dolphin 5320
496  8.1  Workhorse

98 Damon Daybreak 3130
GM Vortech 454  4L80E
SOLD

ArdraF

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Re: Prayers needed
« Reply #69 on: April 13, 2016, 08:00:12 PM »
Does your wife have a wig?  We bought mine before I started chemo and I never had to wear it for that.  We donated my mother-in-law's wigs to the American Cancer Society.  Maybe getting one and having it styled, along with a manicure and maybe a nice new dress (or whatever) might cheer her up.  I'm glad the pain is less.

ArdraF
ArdraF
:D :D

Roadhappy

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Re: Prayers needed
« Reply #70 on: April 13, 2016, 08:01:57 PM »
You and your wife are still in my prayers.  Stay strong for her.

Robin
Robin & Charles
2008 30' Crossroads Cruiser Fifthwheel
2008 F250 Powerstroke

kdbgoat

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Re: Prayers needed
« Reply #71 on: April 14, 2016, 05:53:28 AM »
Charlie, you and Donna are still in our prayers as well.
I know you believe you understand what you think I said,
But I am not sure you realize what you heard is not what I meant


2016 Leprechaun 319DS

89Layton

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Re: Prayers needed
« Reply #72 on: April 17, 2016, 03:22:07 PM »
You are still in our prayers!
2004 Ford E350 Super Duty
1989 Layton M-2450

Charlie 5320

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Re: Prayers needed
« Reply #73 on: May 26, 2016, 10:19:07 AM »
UPDATE

Thank You all so much for helping me with prayers. The Lord has listened to us. The latest cat scan revealed the pelvic cancer has reduced from 4 cm to 1.1 cm, some of the other cancer spots can't  be found now. The cancer on her spine hasn't reduced, but it hasn't grown or spread. The DR. has contacted the DRs. at the Mayo clinic and they as a panel agreed with her treatment. No longer a candidate for surgery because of the spine cancer, but they don't want hit with radiation at this time. They have reduced the chemo from 4 different types to just 1. It is still a very aggressive chemo, but is required because of the aggressive type of cancer she has, and will be on this treatment the rest of her life. They won't put her back on the other chemos unless the cancer markers start to climb again. Next cat scan in 3 months.

We did get some bad news this week, her brother which has been battling cancer too is losing the fight, and only has a few days to a few weeks. The Dr told his wife to contact hospice, to get a place ready for him. 

Thanks again Charlie.
2003 National Dolphin 5320
496  8.1  Workhorse

98 Damon Daybreak 3130
GM Vortech 454  4L80E
SOLD

kdbgoat

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Re: Prayers needed
« Reply #74 on: May 26, 2016, 10:32:30 AM »
That's great news on Donna's health Charlie! We'll keep the prayers going, and adding her brother and the rest of the family.
I know you believe you understand what you think I said,
But I am not sure you realize what you heard is not what I meant


2016 Leprechaun 319DS

SMR

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Re: Prayers needed
« Reply #75 on: May 26, 2016, 11:25:46 AM »
good news. prayers for you and Donna
Gonna put the world away for a minute......
Steve
2016 Bighorn 3760 EL
2015 Ford F350
me, DW and our 2 dogs

retiredcajunlady

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Re: Prayers needed
« Reply #76 on: May 26, 2016, 12:38:29 PM »
I am new to the forum, but please know that you and your wife and family will all be in my prayers.  Take care  Hope D.

Hillia

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Re: Prayers needed
« Reply #77 on: May 26, 2016, 01:29:10 PM »
Also new, but sending prayers for healing and peace to you and your wife.
Sheila and Josh
1974 18' Fleetwood Prowler
2007 Toyota Tundra

Charlie 5320

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Re: Prayers needed
« Reply #78 on: June 02, 2016, 10:31:41 PM »
Wifes brother passed last night around 6:00 pm, at home. He was 60 years old, service is Sunday afternoon , my birthday.

Thanks for the prayers.
2003 National Dolphin 5320
496  8.1  Workhorse

98 Damon Daybreak 3130
GM Vortech 454  4L80E
SOLD

Rene T

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  • Great being on the right side of the grass
Re: Prayers needed
« Reply #79 on: June 02, 2016, 10:52:14 PM »
Wifes brother passed last night around 6:00 pm, at home. He was 60 years old, service is Sunday afternoon , my birthday.

Thanks for the prayers.

From all of us on the forum, you and especially your wife, you have our deepest sympathy. May he rest in peace. If it's any comfort, he is in a much better place now. Just remember all the good memories.
Rene & Lucille & co-pilot Buddy
AKA  Pep N Mem
2011 Chevy Duramax 2500 HD 4X4
2011 Montana High Country 343RL
From the Granite State of NH
& Florida Snowbird in Lakeland FL

Roadhappy

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Re: Prayers needed
« Reply #80 on: June 02, 2016, 10:56:50 PM »
Way to young.  Prayers are with your family.

Robin
Robin & Charles
2008 30' Crossroads Cruiser Fifthwheel
2008 F250 Powerstroke

ArdraF

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Re: Prayers needed
« Reply #81 on: June 03, 2016, 04:45:37 PM »
I'm sorry and hope you know many of us care that this has been such a difficult year.  May your memories be good and your hearts at peace.

ArdraF
ArdraF
:D :D

Charlie 5320

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Re: Prayers needed
« Reply #82 on: July 13, 2016, 10:34:19 AM »
UPDATE

Donna has been on a maintenance dose of chemo now for 6 weeks. The side affects of this chemo is minimal. She is feeling much better now, and her strength is improving weekly. She has been able to resume taking care of her flowers she is so proud of. They bring her great joy, even though they take a lot of work. We made a difficult decision to sell our coach, since NO surgery is anticipated to remove the cancer she has left. We can't travel since she will be on chemo the rest of her life. No sense in just letting it sit. A young family purchased it, and picked it up Monday evening. I'll probably hang around on the site to help others if I can.

Thanks to all of you that have prayed for us, we do believe those prayers were answered. Her hair has stopped falling out and she does have some new growth. It is coming in darker than it was before, and maybe she'll get to where she can color it again. That would make her happy. The next cat scan  will be in a few weeks. The last one showed the spine cancer has not progressed and the pelvic cancer has reduced to 1.1 cm down from 4 cm. 

Thanks again Charlie.
 
2003 National Dolphin 5320
496  8.1  Workhorse

98 Damon Daybreak 3130
GM Vortech 454  4L80E
SOLD

scottydl

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Re: Prayers needed
« Reply #83 on: July 13, 2016, 11:01:03 AM »
Charlie, thanks for the update and prayers continue for you and Donna.  I'm sure it was bittersweet to see the MH drive away, but it sounds like it will have a good home with that young family... maybe new to RVing?

Hopefully my wife wouldn't kill me for mentioning this ;) but you mentioned hair color so I want to suggest what she uses.  It's called Light Mountain Natural Hair Color and is a henna product.  Henna is plant based and widely used by women in Asian & Middle Eastern countries.  The reason I suggest it for your wife is because henna is completely natural with no chemicals or other stuff that could be harsh on her scalp or newly grown hair.  The Light Mountain website has a lot of good information, product descriptions, and application videos.  I buy my wife's supply on Amazon in 3-packs for ~$15 which I think is pretty cheap!
Scott, wife, 3 boys... and the dog
- 2008 Forest River Wildwood 32BHDS
- 1995 Chevrolet Suburban C2500 tow vehicle
- 1994 Thor Residency motorhome... owned 2007-2012

kdbgoat

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Re: Prayers needed
« Reply #84 on: July 13, 2016, 11:41:46 AM »
Charlie, We're glad to hear Donna is doing better. We will continue our prayers for both of you. Please post some pics of her flowers if you don't mind, my wife and I love seeing the results of God's work!
I know you believe you understand what you think I said,
But I am not sure you realize what you heard is not what I meant


2016 Leprechaun 319DS

jackiemac

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Re: Prayers needed
« Reply #85 on: July 13, 2016, 11:51:16 AM »
Charlie, I would agree wholeheartedly with the comments above.  Please stay in touch and involved with the forum.  People like you and Donna are what make it such a great site to be involved with.  I too love flowers so let's see some photos please.  Sending positive healing thoughts.   :)
Jackie n Steve - Happy Scottish Travellers

2017 Heartland Sundance 288rls
2016 Dodge Ram 2500 6.4L Hemi

8th May to 30th October 2017 - Touring Western US

Roadhappy

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Re: Prayers needed
« Reply #86 on: July 13, 2016, 11:14:27 PM »
Always happy to read good updates!  Prayers continue for your wife and family.

Robin
Robin & Charles
2008 30' Crossroads Cruiser Fifthwheel
2008 F250 Powerstroke

Charlie 5320

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Re: Prayers needed
« Reply #87 on: October 12, 2016, 11:52:23 AM »
Update

She is done with radiation. Found out today it didn't work and the bone is deteriorating. That's what is causing the pain now. Her cancer markers have increased since the radiation and have doubled again in the last two weeks. No treatment today because they are going back to a stronger chemo and have to have it approved by insurance before starting. They are wanting to inject some cement to where the bone has deteriorated to see if they can relieve some of her pain. Dr. said if we don't do something, she may not be able to walk in the near future.   
2003 National Dolphin 5320
496  8.1  Workhorse

98 Damon Daybreak 3130
GM Vortech 454  4L80E
SOLD

Bob Maxwell

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  • Smile, and the world smiles with you . . .
    • The American Southwest
Re: Prayers needed
« Reply #88 on: October 12, 2016, 06:11:14 PM »
Lord, in your mercy, hear our prayer. . .
Adiós. . .

Bob †
and wife Betty Font 

. . . still ridin' for the brand.

1994 Suncruiser 34RQ, Cummins 5.9L/230 Allison 3060
'08 Kia Spectra5,
FMCA SKP

Holbrook AZ, west of the Petrified Forrest NP on I-40

scottydl

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Re: Prayers needed
« Reply #89 on: October 12, 2016, 07:14:54 PM »
I'm very sorry to hear that news, and I hope that she is able to get some relief from the pain.  Quality of life day-to-day becomes very important at times like this.  Prayer inbound!
Scott, wife, 3 boys... and the dog
- 2008 Forest River Wildwood 32BHDS
- 1995 Chevrolet Suburban C2500 tow vehicle
- 1994 Thor Residency motorhome... owned 2007-2012

 

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